#Genodive for genomic data windows software
That is, whereas data may be distributed across many databases and computers around the world, they must be virtually connected through software interfaces that allow seamless, authorized access. GA4GH, which now brings together hundreds of individuals and organizations, was built on the hypothesis that the data underlying genomic medicine must be federated. The Global Alliance for Genomics and Health (GA4GH) was established in 2013 to enable responsible and effective sharing of genomic and clinical data in a way that is as simple as using the World Wide Web.
electronic health records, which, although designed to advance human health by sharing clinical data across institutions, have by all measures fallen short of that goal because of a lack of interoperability.Ī FEDERATED DATA ECOSYSTEM. If we stay this course, the likely outcome will be an assortment of balkanized systems akin to those developed for U.S.
Tools and analytical methods are nonstandardized and incompatible, and the data are often stored in incompatible file formats. Current practices in research and medicine hinder the sharing of data in ways that tangibly recognize an individual’s contributions. Regulatory data-privacy requirements do not seamlessly lend themselves to the secure sharing of data within and across institutions and countries ( 4). Despite much progress, genomic and clinical data are still generally collected and studied in silos: by disease, by institution, and by country.
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